So, a little more info:
She does have laryngomalacia and a slightly deformed trachea. Nothing that they decided needs surgery. She had healed from tuesday to friday. It was a miracle. But she went blue on the operating table, which is why they decided to keep us.
They ran a bunch of blood tests and urine tests the first night. A blood test did come back with some abnormalities which was why they kept us a second night. They ran an ekg, chest xray, and genetic blood tests over the next few days.
As they were preparing to discharge on monday, they decided to keep her another night. That night she started throwing up violently, refusing to eat and her soft spot swelled. They put in an iv and started her on antibiotics. And ran a ct scan and a renal utral sound to check her kidneys. Everything came back normal for all the major stuff. She did not have a fever, but everything else points toward meningitis. And since she has been on the antibiotics, she is starting to do better.
The doctor called me yesterday because he was not convinced of the results of her iron and had ordered them tested again. It turns out, she has a low iron level which causes her to pass out, and to only eat for a few minutes. The turning blue is something stenosis.
We are still waiting for some genetic tests to come back, but we are happy to be home. She is a little peaked from the antibiotics, but her soft spot is no longer swollen.
It has been such s miracle for my mom to be here. I don't know what we would've done without her. Tomorrow morning she leaves, but my sister comes so I am looking forward to that! Thank you for all your prayers! I know that they have helped! The nurses and doctors at Primarys are amazing! The way they have so many programs set up to help families is incredible!
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