Kotah loves the slide!
This is our life right now..... Frozen and laundry. Always laundry.
And yet another video of walking, bribed of course by Cheetos!
Thursday, April 24, 2014
Wednesday, April 23, 2014
We have a walker!
Just this week, Kotah has started walking. She had been refusing to the past little bit as in she didn't want help or to walk between me and Ty. She has been big into climbing though and can go up and down our little kid slide all by herself. Monday she just started taking off. All over. Screaming if we tried to help her, and so darn pleased with herself when she got where she wanted to go.
She was super tired tonight, but is in love with her blankie and will do anything for it. When she is tired she will lay on top of it and try to swaddle herself. So she walked for it. More videos to come, but just wanted to share this little gem tonight.
She was super tired tonight, but is in love with her blankie and will do anything for it. When she is tired she will lay on top of it and try to swaddle herself. So she walked for it. More videos to come, but just wanted to share this little gem tonight.
Sunday, April 13, 2014
(witty title for update here)
The past few weeks have been fairly incident free. We have focused on Ty's hearing, finishing the side yard and the 3 palate garden. Ty is kicking into gear for the last run of classes and then off to boot camp then...... GRADUATION! YAY! It is stressful right now between work, school and internship, but he is hanging in there. As far as his hearing goes, we visited with a neurologist this week (or last week... can't remember) who said that his ears are completely healthy, but there is a mis-communication in the nerves. He recommended a few other avenues to go down and we are currently working on those. There have actually been little improvements here and there that surprise us all. Here is hoping it can be reversed!!!!
Katie turned 4. She is really growing up. More and more days she is such a sweetheart and is leaving the three year old tantrums behind. She LOVES Frozen. Most of the day is spent singing the songs and acting out the movie. She is becoming more aware of other peoples feelings and service. Something that I really hope to instill in her is the knowledge that serving can bring great happiness. She collected and donated 100 books to her doctors office for her birthday project. Their books were wearing thin and with how much we are there, she noticed. The nurses and doctors were so happy and amazed to get them. They sent her a Thank-you letter this week and now she wants to send them a Thank-you letter for the Thank-you letter. She has a very tender spirit and will get teary eyed when she feels "spiritually" happy. It could be a song or a conversation, but it is so sweet to see.
Kotah has been doing well the past few weeks. It almost seems like forever since we were in the doctors office, but in reality as I check my calender it has been just a couple of weeks. Its that whole "there is a new month on the calender and so far since the 1st we have not had...." oh wait, never mind. As I am typing this I am remembering a visit after the 1st. Oh well. The past week has been no doctors, let's just leave it at that. She is learning how to sign. The other day, she, Katie and I were eating lunch at the table when she signed "milk". Katie and I applauded her achievement and of course I gave her a drink of milk. A minute later she signed "more. milk. please." Then proceeded to emphasize with a loud "EEEEEASE!!!" She is very smart. Her language skills are developing well, especially where music is concerned. Her favorite song right now is "Let it go". She sings it and even does some of the actions. But only when there is no attention on her at all.
This past week things have started to go downhill. Looking back I can see it, but at the time I didn't so I wasn't quite as prepared for today as I could've been. There was the night I got absolutely no sleep. As a matter of fact, I think there were three nights like that this week. I must admit that it affects my "nice" levels and being pleasant has been a struggle. So it begs the question why I am awake while said child is sleeping in my arms..... who knows. It might be the caffeine from earlier. Or the chocolate. Yes, I am sure that is it. Anywho.
Yesterday we took the girls swimming. I was going out for the night and wanted to wear them out for Ty. We only spent 30 minutes in the pool. Kotah had been a little more whinny and fussy the past couple of days, but we attributed it to grumpy toddler getting teeth. Looking back I wish I would've seen it more clearly. She just wanted me to hold her all the time and since she had been doing well, and by doing well I mean not even needing oxygen some nights last week, I shrugged it off as teeth.
After returning home late, I noticed that she seemed to be struggling to breath while sleeping on Ty. This is concerning as if it is a somewhat bad night and she kangaroos off of one of us, she is usually ok. Struggling while kangarooing is a sign that something is not right.
Earlier this week, while awake, she had been struggling, but again, I attributed it to the fact that she was moving around all over as fast as she could. I was doing the dishes and she scooted up to me with her monitor wire in her hand, trying to put in on her toe. I checked, sure enough, she was low, but upon being held and calmed down, her levels went back up. What a smart kid! Scary. She has also gone blue many times over the course of the past few weeks, but with her oxygen levels remaining in a safe range.
This morning she was very lethargic and blue. After a bath, with no improvement, we decided to hook her up and see where she was at. Low 80s. Usually when she dips, she can bounce back if she is awake. It wasn't happening. Cue oxygen whilst awake. This is the first time in at least a month where she has needed it during the day/while awake. It was a little heart-wrenching to see her so out of it. This wasn't the same baby as a few days ago. Over the course of the day, she perked some in mid afternoon, but by evening was not her usual self again.
I believe in a previous post I mentioned that we had been taking a break from specialists. I needed the break emotionally. It has been very trying. The straw that broke the camels back was the genetic disease office telling me to do the not covered by insurance mucho dollars blood work before the doctor would look at her medical history. Last night I felt like I was in a better place. In my prayers I let Heavenly Father know this. I thanked him for the reprieve and asked for strength to begin anew looking for answers. Then today happened. Do you think He does "take-backs" on prayers?? Somewhat joking. Somewhat.
I know that Kotah has been strengthened this past little bit. I know that I have been as well. Time and time again God has shown me His love for me. In just the little ways. I needed to take some time to just sit in His love. I know He will continue to do so.
I was blessed today to witness the baby blessing of a friends child who also has medical issues. The spirit of love was so strong. I was moved to tears. It was a gentle reminder of how precious each child is and how much extra care and love the families of special children receive through mortal and spiritual angels. That child and her sisters and parents are deeply cared for here and beyond the veil.
I wish life was easier for Kotah. I wish I could make it all better and take away the pain and the suffering she goes through. I wish I could be there more for Katie. For Ty. Even for myself. Every situation is different. But our Heavenly Father and our Savior Jesus Christ understand. They understand each situation on a deep, personal level. They know EXACTLY what it is like. Whether it is infertility or cancer or an argument with a friend. Everything big and small is understood and can be loved and supported through. We can not do it alone. I can not do it alone. That is what the atonement was all about. So that we do not have to do anything alone.
Katie turned 4. She is really growing up. More and more days she is such a sweetheart and is leaving the three year old tantrums behind. She LOVES Frozen. Most of the day is spent singing the songs and acting out the movie. She is becoming more aware of other peoples feelings and service. Something that I really hope to instill in her is the knowledge that serving can bring great happiness. She collected and donated 100 books to her doctors office for her birthday project. Their books were wearing thin and with how much we are there, she noticed. The nurses and doctors were so happy and amazed to get them. They sent her a Thank-you letter this week and now she wants to send them a Thank-you letter for the Thank-you letter. She has a very tender spirit and will get teary eyed when she feels "spiritually" happy. It could be a song or a conversation, but it is so sweet to see.
Kotah has been doing well the past few weeks. It almost seems like forever since we were in the doctors office, but in reality as I check my calender it has been just a couple of weeks. Its that whole "there is a new month on the calender and so far since the 1st we have not had...." oh wait, never mind. As I am typing this I am remembering a visit after the 1st. Oh well. The past week has been no doctors, let's just leave it at that. She is learning how to sign. The other day, she, Katie and I were eating lunch at the table when she signed "milk". Katie and I applauded her achievement and of course I gave her a drink of milk. A minute later she signed "more. milk. please." Then proceeded to emphasize with a loud "EEEEEASE!!!" She is very smart. Her language skills are developing well, especially where music is concerned. Her favorite song right now is "Let it go". She sings it and even does some of the actions. But only when there is no attention on her at all.
This past week things have started to go downhill. Looking back I can see it, but at the time I didn't so I wasn't quite as prepared for today as I could've been. There was the night I got absolutely no sleep. As a matter of fact, I think there were three nights like that this week. I must admit that it affects my "nice" levels and being pleasant has been a struggle. So it begs the question why I am awake while said child is sleeping in my arms..... who knows. It might be the caffeine from earlier. Or the chocolate. Yes, I am sure that is it. Anywho.
Yesterday we took the girls swimming. I was going out for the night and wanted to wear them out for Ty. We only spent 30 minutes in the pool. Kotah had been a little more whinny and fussy the past couple of days, but we attributed it to grumpy toddler getting teeth. Looking back I wish I would've seen it more clearly. She just wanted me to hold her all the time and since she had been doing well, and by doing well I mean not even needing oxygen some nights last week, I shrugged it off as teeth.
After returning home late, I noticed that she seemed to be struggling to breath while sleeping on Ty. This is concerning as if it is a somewhat bad night and she kangaroos off of one of us, she is usually ok. Struggling while kangarooing is a sign that something is not right.
Earlier this week, while awake, she had been struggling, but again, I attributed it to the fact that she was moving around all over as fast as she could. I was doing the dishes and she scooted up to me with her monitor wire in her hand, trying to put in on her toe. I checked, sure enough, she was low, but upon being held and calmed down, her levels went back up. What a smart kid! Scary. She has also gone blue many times over the course of the past few weeks, but with her oxygen levels remaining in a safe range.
This morning she was very lethargic and blue. After a bath, with no improvement, we decided to hook her up and see where she was at. Low 80s. Usually when she dips, she can bounce back if she is awake. It wasn't happening. Cue oxygen whilst awake. This is the first time in at least a month where she has needed it during the day/while awake. It was a little heart-wrenching to see her so out of it. This wasn't the same baby as a few days ago. Over the course of the day, she perked some in mid afternoon, but by evening was not her usual self again.
I believe in a previous post I mentioned that we had been taking a break from specialists. I needed the break emotionally. It has been very trying. The straw that broke the camels back was the genetic disease office telling me to do the not covered by insurance mucho dollars blood work before the doctor would look at her medical history. Last night I felt like I was in a better place. In my prayers I let Heavenly Father know this. I thanked him for the reprieve and asked for strength to begin anew looking for answers. Then today happened. Do you think He does "take-backs" on prayers?? Somewhat joking. Somewhat.
I know that Kotah has been strengthened this past little bit. I know that I have been as well. Time and time again God has shown me His love for me. In just the little ways. I needed to take some time to just sit in His love. I know He will continue to do so.
I was blessed today to witness the baby blessing of a friends child who also has medical issues. The spirit of love was so strong. I was moved to tears. It was a gentle reminder of how precious each child is and how much extra care and love the families of special children receive through mortal and spiritual angels. That child and her sisters and parents are deeply cared for here and beyond the veil.
I wish life was easier for Kotah. I wish I could make it all better and take away the pain and the suffering she goes through. I wish I could be there more for Katie. For Ty. Even for myself. Every situation is different. But our Heavenly Father and our Savior Jesus Christ understand. They understand each situation on a deep, personal level. They know EXACTLY what it is like. Whether it is infertility or cancer or an argument with a friend. Everything big and small is understood and can be loved and supported through. We can not do it alone. I can not do it alone. That is what the atonement was all about. So that we do not have to do anything alone.
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