Update time!

As the title states, it is time for an update! We went and visited with a new neurologist this past week. Just a check up. She went over everything with me and how Kotah is doing now. She believes that part of her symptoms may be caused by the genetic mutation in the brain stem, or it could be a small tumor. Talked about another MRI, but that wont happen until after she turns 2. First because the brain is still not fully developed to a point that they would be able to see the tumor. Apparently that happens around 2. And also, Kotah doesn't have the best time with anesthetics so they want her to be older before attempting anything. This also rings true to another echo, and down to something as small as dental work. The neuro sent us over to cardio after her appointment anyway just to check in with them and get a follow up. 

The only other concern at this time is that her fontanel has not fully closed. Gonna keep a close eye on that. (But she really didn't explain what it means. Probably thought there was no immediate need to freak out the mommy.)

All in all, Kotah is doing fantastic. She will speak in full sentences (if she wants to), is learning how to hop, put on her pants, has had success at going potty (I 'eed my 'ivacy!"), and in general is quite smart. I know, I am the mom, so of course I am allowed to think that. :) 

We are currently waiting to hear results on some blood work for Katie right now. She has always enjoyed chewing on things, and while we thought it was a stage and tried to re-direct, this past week we came to a big realization that it was more than just a stage. She will chew on just about anything, never swallowing, just chewing. We're thinking that it is a sensory issue, but want to make sure she is not low on her iron. She was such a brave little thing when she went to get her blood drawn. The nurses were very friendly and tried to make it so much easier for her. The first poke didn't work so they had to poke a second time. She never cried when they poked, just at the thought of having it happen again. Afterwards, she wanted to tell her friends about it, and asked me if that would be ok. I told her that she could always talk to me and she said "Mom, you just don't cut it. You're my mom, not my friend. But its ok. You're just trying to be helpful." What a cutie! 

Ty has finished school for now. We are so proud of him and extremely happy he is home in the afternoons! Especially me! He is a very involved daddy and I know that the girls (and me, totally selfish here) benefit greatly from it. 

We really are just a big bunch of sillies!!!   -