We are in the hospital again. This time was just for a 24 hour PH probe study. The two nights prior Kotah didn't have any apnea spells. But she was right back on track last night. After about the 8th time the monitor went off, as the nurse and I sat there watching her waiting for her to self correct or change colors, the nurse turned to me and asked "do you seriously do this every night?" Honestly though, I think I got more sleep here than at home. Something about having a whole staff full of eyes and ears that are also watching out for her.
We are still waiting for medicaid to come through to get her tongue tie and lip tie fixed. (and hopefully help out with all the other expenses as well) So far our insurance has saved us over 25 grand, but its the amount they didn't cover that is a little stressful.
This time around we were a bit more prepared and I think we have avoided any emotional breakdowns with Katie. And we were well versed on all the support the hospital has to offer, so we've kept well feed and entertained.
We get to leave here in 2 hours and head home to continue life as we know it. Our normal for now. The results of the test will be in in 5 days and we will go from there. I have to count my blessings. I have met two families today that have been here over a month. One waiting for a heart for their baby and one waiting for a son to be recovered from a car accident. But with both these are their only children. I can't imagine what I'd do with Katie if we had to stay that long. Even though they still haven't figured out what is wrong, I am grateful Kotah is healthy enough to stay home most of the time. We'll just keep enjoying and be thankful for each moment.
Oh my goodness, Sarah! I had no idea. I have been so busy with my new baby I have just now been looking back at your blog. I am so glad you have had the promptings of the Spirit helping you with your little baby. I will pray for her and you. Keep us updated.
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